| T O P I C R E V I E W |
| BlueTongueDan |
Posted - 15/08/2009 : 15:56:26
Hi Kellog, Thought id make a new thread cause I didnt want to wait till midnight to reply, lol.
Didn't take it to PM's as some people may want to join in.
Anyway, in reply to your post...
quote:
Originally posted by Kellog
No answer from Kehhylr as to whether I am banned or not so pretend I am not here!!! 
Are you a type 1 diabetic BTD? Jos (who is 12) was diagnosed a couple of years ago after a terrible few months where GP said twice it wasnt diabetes so we were thinking it was cancer or something like that. He was eating so much but looked so skeletal I couldnt look at him when he had a bath, he was constantly drinking and wetting bed, having to leave every lesson to go to the loo and getting bullied for it. He was even sleep-drinking, my daughter caught him drinking from the bathroom tap and he was fast asleep. His personality totally changed and he was so angry and tense all the time, my husband even said one night that he didnt recognize his own child. In the end, after waiting and waiting for a referal, I rang child assessment unit and said either you see him know or I bring him into A & E. They saw him straight away and within half an hour we had a diagnosis. His blood sugar was 36 and he ketone acidotic - emergency situation. Was admitted, put straight onto insulin drip and saline, and within an hour was behaving like my son again.
He finally started doing his own insulin injections at the beginning of this year and was really feeling in control, but unfortunately it has now gone completely haywire - he is getting lots of highs and only coming down occasionally, which is why we are doing these night tests. They think it is because of hormones but arent sure. Think the next move is to attach a blood sugar monitor to him that checks his blood every 30 secs for 3 days, so they can get a better picture as to what is going on. They have finally given him some tablets for the headache that comes with being high - he missed the last 2 weeks of school because his headache was so bad. It is just such a shame and he is feeling very frustrated and upset about it because he had just begun to feel as though he was in control of his diabetes, in control of his life, and this happens. Poor kid.
I can totally relate to your son. I was diagnosed type 1 when I was 6 (12 years ago) and ive never been able to control it. With all those symptoms, Im suprised your son wasnt diagnosed straight away!
I went through the same things. Apart from I wasnt eating but drinking constantly.
Ive been on two injections a day for as long as I can remember. I absolutly hated doing injections so when they tryed getting me on 4 injections a day, I was having none of it.
They then tried getting me to go on the pump but I wasn't happy about having it attached to me 24/7.
A few months ago my new diabetes nurse suggested the SQ pen. Its a needle free injection pen which shoots the insulin through the skin via pressure.
Ive been using it for a few months now and I love it!
It stings a little but its soooo much better than injecting.
Im now doing insulin with this pen various times through out the day (Everytime I eat) and I finally feel like im starting to control my diabetes.
Check it out,
http://www.sqpen.nl/
I wouldn't worry too much about your sons levels at the moment. My levels went crazy in my early teens and I was told it was down to hormones. They were right too.
Anyway, Good luck  |
| 9 L A T E S T R E P L I E S (Newest First) |
| Kellog |
Posted - 28/08/2009 : 10:56:44
He has just woken up this morning (or should I say been woken) and his blood sugar is 4!!! Fantastic! Lets hope it stays down. xxx |
| BlueTongueDan |
Posted - 28/08/2009 : 09:56:38
Wow, Sounds like he's having a rough time.
I certainly feel for him!
Really hope his levels settle down and he feels better soon. |
| Kellog |
Posted - 28/08/2009 : 05:40:18
Hi
This time last night I was in hosp with Jos cos of his diabetes. He'd been high for ages but did keep coming down occassionally and was under consultant. Last few days he was high permanently, drinking all the time, going to toilet all the time. By 10.30pm he looked white as a sheet. Got him to test ketones and he had them. Straight to hosp. Half hour waiting, then to Child A & E. Poor kid had 2 canulars fitted. Finally moved to ward about 2.30am. More tests and saline drip attached. Didnt need 2nd canular, so was taken out. Settled for sleep about 3.30am, then woken every hour for blood tests. Home this afternoon (Thurs) about 4pm. Have uped long acting and now just have to wait and see. Didnt see his normal consultant, new one said it was cos he was injecting into insulin bumps all the time, which is rubbish cos he is avoiding those areas as much as possible. Been long couple of days. He's being seen again at clinic next week. Poor kid, and it all happened the day my daughter got her GCSE results! xxx |
| Kehhlyr |
Posted - 18/08/2009 : 13:08:49
quote:
Originally posted by Kellog
I know  but its fun 'sneaking in' and pretending I am not there
I haven't been on for a couple days, I'm glad you haven't been here. |
| Kellog |
Posted - 15/08/2009 : 21:44:50
I know but its fun 'sneaking in' and pretending I am not there |
| hillzi |
Posted - 15/08/2009 : 19:01:52
Think it's Kehhlyr being.. well Kehhlyr
|
| Kellog |
Posted - 15/08/2009 : 18:29:48
I posted this after being accused by Kehhylr of not having any staying power!
quote:
--------------------------------------------------------------------------------
Originally posted by Kellog
Give me a break Kehhlyr,lol, went back to bed at 5 after watching sun come up and birds start singing, but didnt sleep much. I dont choose to be up at those ridiculous hours, although I do like the peace and quiet....just me, the dog and Kellog, in the dark, watching tv or on the laptop or both at the same time.... xxx
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but I posted it at 2pm to which I got this reply -
quote:
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you broke the rules of this topic, you posted at 2:09PM!!!!
That should get you an instant ban. But we'll let you off this time.
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Havent had confirmation from Kehhylr that I am forgiven so have been 'sneaking' in and out the last few nights! Lol! xxx
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| Brookestar |
Posted - 15/08/2009 : 18:00:40
why would you be banned kellog? |
| Kellog |
Posted - 15/08/2009 : 17:45:30
Thanks BTD, its good to talk to someone who is actually going through it. When Jos was first hospitalized he started testing his own blood straight away and has never had a problem with it, but he refused to do his insulin injections. Because of this he was on the 2 injections a day as we couldnt give him one at school. We kept trying different ways to encourage him but he seemed to have a mental block about putting the needle through the skin. He tried the SQ pen but didnt like it. Might be worth trying again as it was tried when we were pushing him to inject himself.
It was so weird, after about 18 months of having it and refusing to inject my husband went to Israel. I was asleep as I am not well and my teenage daughter (who he finally agreed to let her inject him 6 months previous to this) was in charge. From what I can gather she was in kitchen making breakfast and told him to do his insulin, meaning test needles and dial up insulin....she then walked into lounge and he was literally doing his injection and into his tummy, where he would never let us inject him! He tried a few times after that to get me to do it for him but I refused. The consultant thinks that him not doing his injection had a lot to do with making me do it for him, as it made a bond between us and there is so little I can do with him. Since then he has started injecting 3 times a day (4 really as 2 at breakfast and then once at lunch and once at supper). He started out not wanting to do it with anyone watching, he would either leave room or we had to look away. Last week we went to a pub for lunch and he happily pulled up his top and injected himself in front of everyone. He hasnt told his class, he does his blood tests secretly in his school bag and slips off to the school office to do his injection. He has been with this class a year now and I think they have probably worked it out now, but he wanted them to get to know him as 'normal' not as a 'sick' kid. He has started working out his carbohydrates at each meal and deciding his own insulin and he finally felt as though HE was in control, not us and not his diabetes - and now it is all haywire again. His blood sugar has got so high in the last couple of days that his monitor says HI cos it is above what it can measure, but he is also coming down at times and he is checking for ketones occasionally and has been negative. Hardest thing at the moment is his mood swings, he gets very difficult to handle, very stubborn about doing a test and we had a major battle with him while we were away when he tested 25 but refused to inject. Landed up with him standing out in the rain for half an hour and eventually being talked down by a friend of the family. He is not easy to live with and I feel especially sorry for my daughter as she often receives the brunt of his anger - she tries to stand up for me as I cant do anything and he cant handle her 'being mum'.
Am going to do one more nightime test, either tonight or tomorrow and ring his consultant on Monday, so we shall see what he decides then.
Have a good friend just younger than you. His best mate had diabetes and was testing one day and for a joke suggested that Chris test to so they could see what a normal reading was. What they found was that he had sky high blood sugar and his mate said he needed to go to the docs as soon as poss! He had diabetes type 1 too. He is very supportive of Jos, very intelligent and probably knows all there is to know about diabetes now! He often uses words I dont even understand! But he is lovely and even offered to let Jos inject him when Jos was refusing to inject!
Sorry, I have really rattled on havent I, didnt mean to! Enough said for now. I wonder if any other members of the forum are diabetic or have family who have it.
(Do hope Kehlyr has forgiven me for posting on midnight site before midnight - do hate having to sneak in!!!)
xxx |
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